Tag Archives: food allergy mom

Coming to Grips with Multiple Food Allergies

The Food Allergy Files: Coming to Grips with Multiple Food Allergies | completemama.com

Twas the night before Christmas… and I’m writing an update about my kids’ food allergies. (Okay, I’ve been working on it for a while because nothing is speedy around here these days.) I’ve actually been working on a post to share what our first Halloween with food allergies was like (How’s that for slow?), but I am going to back-burner that post and share it some other time.

I don’t think I wrote about this before, but my oldest went to his follow-up with the allergist and was diagnosed with asthma. He’s had trouble with lots of flares beginning in August. The asthma flares seem to be triggered by illness, possibly environmental factors, and his latest anaphylactic reaction seems to have also been a trigger. Being that it’s cold season, he’s been spending a lot of time using his nebulizer. His next follow-up is in March but we’ll probably be back before then.

My youngest went to the allergist for her allergy testing a couple weeks ago, and I am still trying to catch my breath after getting the results. She is allergic to: Eggs, Soy, Milk, Coconut, Sesame Seed, Peas, Peanuts, and Tree nuts. She now has her own Epi-pen, and she is to avoid shared equipment for peanuts and tree nuts, just like her brother. Her peanut RAST was literally off the chart, class 6, which is the most severe class of allergy. She is also likely allergic to amoxicillin, but her allergist said she’s just a little too young to do the test for that. She’s to avoid any amoxicillin until she can do the test. In addition, she likely has asthma too, but she’s too young to do that test also. The doctor got us another nebulizer for her. (Saying it’s been a great year to have health insurance in this family is a huge understatement.)

So, whew. We knew something like this was coming, because like I’ve said before, THIS is the kid we’ve been worried about allergy-wise. It is overwhelming to get diagnosed with so many food allergies. A few random thoughts:

  • You can’t even imagine the excitement we feel when we find a packaged product that is safe!
  • The peanuts and tree nuts were a complete shock. I asked them to test for those “just to be cautious” since we don’t expose her due to her brother’s allergies.
  • Her symptoms that caused us to test: Random bouts of hives, eczema all over causing her to scratch until she bleeds, and random bouts of vomiting.
  • When her nebulizer was delivered, I had the choice of getting another table top one like my son’s or getting a travel one that will plug into a wall or a car. I opted for the travel one, so we can use a nebulizer anywhere. I am not even being sarcastic when I say that was exciting!

This combination of allergies kind of crosses us over the threshold from “looking for which products are still safe on the shelf” to “accepting there is very little we can buy in a package and that we’re going to have to make most things from scratch.” I think it took a little while to truly come to terms with that, but now we accept it. We may as well embrace it and become great cooks! (Related: I got a new bread machine, and I’m so darn excited! I picked it because it’s supposed to be great for gluten free, and my intent is not to “gluten” it since I can’t have gluten. So far I’m really happy with it, although buying the necessary ingredients has been a challenge since I can only find certain products locally in Bob’s Red Mill brand, and they contaminate with nuts. Thank God for online shopping.)

So life got more challenging, but we can do this. Only God knows the reason for these challenges, but we accept them and we’ll all do our best with the support of our family and loved ones. A number of friends have put me in touch with their food allergy mom-friends, and that community is just so amazingly helpful and supportive.

Here some bible verses that have helped me get through this challenge:

Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing. ~James 1:2-4

We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed. ~ 2 Corinthians 4:8-9

Merry Christmas to all!

The Day I Officially Became a Food Allergy Mom

The Food Allergy Files: The Day I Officially Became a Food Allergy Mom (www.completemama.com)

“Oh, it’s probably a reaction to eating a food he didn’t like,” my son’s pediatrician said when I mentioned hours of vomiting after eating a bite of a peanut butter cookie at age 2. “I wouldn’t worry too much about it if he didn’t have hives.”

Oh, how I wanted to believe this. My son never liked peanut butter, and at the time he pretty much liked everything else, so it seemed at least possible he could have overreacted. I stopped letting him eat anything with peanuts, just in case.

Over the next year, there were other episodes of unexplained vomiting when eating outside our home. Then came the day he took a bite of a cookie with walnuts. He immediately said he didn’t like it and spit it out. About 30 minutes later, he was vomiting in my car. This time a few hives appeared, but he seemed okay.

At our next pediatrician appointment, I mentioned that I’d like a referral to an allergist so he’d be labeled before he started school if he needed to be. The pediatrician put in our referral and a week or so later we got our appointment… for 3 months later.

At the allergist, I gave his history and said, “Yeah, I don’t know if it’s just a sensitivity, but I want to at least check it out.” I had no idea what I was in for that day.

The nurse numbered my son’s back and applied his “ticklers” containing traces of peanuts and tree nuts. There was also a dab of peanut oil, a control spot with nothing in it, and a histamine spot that was supposed to react no matter what. We were told the testing doesn’t break the skin, that it might get a little itchy, and not to let anything rub my son’s back during the 20 minute duration of the test or it could possibly mess up the results.

Within 1 minute, my son was asking me to come hug him and check if there were holes in his back. Numerous spots were already red, and I could tell right then and there we were dealing with an allergy. After a few minutes the nurse came in to check him, then she came back in with someone else, then the doctor’s head popped in.

“Wow, that peanut oil one is HUGE!” the doctor was saying as she returned to the hallway.

The nurse was sent back in to remove the peanut oil from his back at the 10 minute mark, halfway through the test. Maybe this should have been my first clue that something abnormal was happening here.

The next ten minutes were spent just trying to sooth my son and keep him still, as he was in obvious discomfort.

At the 20 minute mark, the nurse returned to measure his spots. Almost everything was either borderline or a clear allergy. I think there were only two spots that didn’t react at all.

The nurse wiped everything off his back and applied a heavy coat of hydrocortisone cream. She said the doctor would be in to discuss the results and left the room. My son and I sat down at the table to wait for the doctor. I’m not sure how much time passed. Maybe five minutes. Maybe ten.

Then he started to get very congested. He began to gag and heave. I started to get him up from the table and a nurse popped in. “He’s gagging,” I said. His face turned beet red as he coughed and gasped.

Within what felt like ten seconds, the room was swarmed. I could hear the doctor shouting orders for Benadryl, epinephrine, and prednisone. Was this really happening? Yes, it was. Anaphalaxis is rare during a skin test, but it was happening. I didn’t have time to panic because I had to calm my son who was beginning to shout and fight with the nurses, something totally out of character for him.

After we got him medicated and calm, he was still having breathing problems, so we had to do a nebulizer treatment. The doctor peeked in and said we weren’t going anywhere for a long time, and the staff put on another movie for us. (At this point we had already finished Ice Age. Next up was Planes.) Some of the staff came in and brought my son a coloring book, stickers, and a toy lizard. These small things really helped turn around what was a horrible experience for him.

Finally, the doctor came in and hit us with a fire hose of information. She made sure to say the words “life-threatening allergy” about 15 times. She made she we understood that because of his severe reaction, we had to be careful about anything he comes into contact with. He can’t eat anything made in the same facility with peanuts or tree nuts. No more hard ice cream. No bulk foods. Lessons in cross contact. No nuts in the house. No nuts at preschool. (We were already all set there. Thank God.) Get the extended family on board to keep nuts out of family gatherings or don’t bring him to those places. 50 other things. It was a lot to take in, especially after all we had been through.

I left there kind of joking that “This wasn’t even the kid I worried most about food allergy-wise.” My daughter has had food issues for a while, and we now have her appointment set up for allergy testing in December.

In hindsight, I’m amazed. It is only through the grace of God that my son never had a life-threatening reaction before his allergy test at age 4. Now that we’ve realized his sensitivity, every instance of vomiting he had after eating outside our home can be explained by cross contact with nuts. In one of those instances, we even let him eat Chex Mix that had nuts and we just picked out the nuts. I shudder to think about it now. That could have been disastrous. Now that I know more about food allergies, we should have taken the vomiting a lot more seriously. Hindsight is 20/20. We are just so so so lucky.

So that, in a nutshell (haha), is how I became a food allergy mom. I have learned SO MUCH since that day and plan to share quite a bit here about what I’ve learned and about our experiences with food allergies.

Does anybody have any questions about food allergies that I could answer in a future post?

PS. People who have heard our story have been nervous about taking their kids for allergy tests. I want to note that anaphylaxis is extremely rare during a skin test. It is so rare, a dear friend of mine took her son a few weeks later to a different practitioner at the same allergy office, and when my friend mentioned our experience, the practitioner said, “I remember that! It was a Wednesday!” The story stuck out to this practitioner several weeks after it happened, and that office does TONS of allergy testing. So while it’s good to be aware of the possibility of this happening, please don’t get too nervous about it.